friendship · goals · isolation

The Buddy System

9.20.18.jpegWhile many actions I’m taking are to strengthen the net around moving toward my goals, it’s become clear that plain “accountability” isn’t enough for me in some cases.

Would you believe, even following that blog about the importance of music in my life, that I bought tickets to a concert last Friday and didn’t even attend?  It was the evening after Back to School night, so with the delayed homecoming it was a very short night of sleep and a long day.  But still.  I discovered, as I checked in by phone with my Action Partner (and admitted to her that in just a few hours I “should” be going to a concert), that just buying a seat doesn’t get me to that seat.

As I looked at my list of actions for yesterday, I had 2 competing tasks: “Find Opera Buddy” and… “Call Opera to Sell Back 2nd Ticket.”

Now, I’m not as dense as I look;P so I can extrapolate from last Friday’s experience to know, pretty deeply, that if I sell back my 2nd ticket, I have a much less likely chance of actually making it to the show.  And that’s just sad, because I was so excited to buy this package of tickets and go to the opera.

(I’m not traditionally a huge opera person, but I’ve gotten into a few over the last couple of years, so I bought a small, teacher-discounted set that includes Tosca, which I’ve seen and loved, and It’s a Wonderful Life, which seems like it’ll be a totally cool and unique opera experience.)

So.  I need a buddy.  It’s funny: 2 coworkers and myself bought tickets to see this simulcast of Macbeth last year at a movie theater — one of them had to cancel because of a work commitment and one got violently ill in the middle of the day!… So, you guessed it!  I didn’t go either.

There are plenty of activities for which I don’t require a buddy, but it seems the list of things for which I do are any events requiring I leave my 5-block radius once I’m home from work!

In the age of last-minute flaking, made so much easier because of texting, I find that I am flaking out on myself.

Part of my vision/goals for myself is to form new friendships and to strengthen those I have.  If that’s the case, then it follows that maintaining fidelity the first of those action items (“Find Opera Buddy”) will generate more dividends than going (or not going) alone.

 

codependence · friendship · surrender

The Heart Cell does not judge the Liver Cell.

2.23.18 flood.jpg

In true ‘Universe’ fashion, my commitment to give up worrying about others has been put to immediate and raging test.

Over the past 2 years, I’ve formed a friendship with a now 91-year old gentleman because of my work on overcoming my debting thinking and behavior.  Together with another person (ostensibly) committed to the same, the three of us meet on a monthly basis to review Dennis’s financial situation and suggest actions for him to take.  Dennis is one of the sweetest people, a trumpet player in a veteran’s band, a coronet player in another band, and perpetually tan from his daily sun-lamp “health” regimen.

Dennis is also totally drowning in debting behavior.  He lives in a cramped, cluttered illegal studio/porch behind his two-story house, where he’s rented 2 units to other people — one of whom recently called the fire inspector and has created a chaos of tasks Dennis “must” complete in order to keep his house.

Over and again during these 2 years, there’s always been something that Dennis must pay for or a crisis he must overcome.  And, diligent compatriot that I am, I attempt to mitigate the advice he’s receiving from the other member of the triad (“pack up everything and move to Bali;” “escape the tax man by moving to Mexico”) and from his own brain (“I have to take down all the paintings in the foyer because my tenant wants me to;” “She wants a gold door, so I have to pay for it”).

When we began, Dennis had $24,000 in savings; now he has less than $5k.

And when he called me yesterday to give me the update on his situation in advance of our monthly meeting, and told me about this freaking gold door situation, I kind of lost my cool.

… well, not kind of.

I became enraged that people are taking advantage of him; that this tenant now feels she can play him for a piggybank because she can “call the fire chief” on him.  And I feel enraged that he’s allowing this, that he’s allowing spiders to spin webs in his head and breed lies.

I feel angry, … and I feel powerless.  And sometimes when I feel those things, particularly when I feel that an injured person is being harmed, I try to control it ALL.  What the tenant does, what Dennis does, what the other member of the triad does… I try to make it all better for Dennis because it’s obviously and clearly not going “well.”

… however, more to the point, it’s merely not going the way I want it.  For all I truly know, this is exactly how it should unfold.  Maybe Dennis is supposed to move into an assisted living program and forfeit his home to these mongers.  …

But whatever it is that he is or is not supposed to be doing, my ire does not help anything.  It makes him defensive, me offensive, and doesn’t help move the needle forward.

I am powerless over his situation, and judging him only serves to make me ill.

I am not his Higher Power.  I can’t read the runes.  I can’t make him change his thinking from these behaviors — and this is a hard fact for me to swallow: I cannot change others’ minds to act in ways I think they should.

And so, also in true Universe form, this morning’s Oprah/Deepak meditation emphasized the following sentence:  I find success without judging others or myself.

I am in a middle place, where I haven’t yet relinquished this habit of judging, caretaking, controlling and saving others, and where I haven’t yet found a replacement way of being.

This is “okay for now,” as my bf says, because I do at least know that wherever is next will have more dignity and humility — for me, and for those I love.

action · authenticity · friendship

All in.

2.5.18 caravaggio Tour_Cheat beter

With daylight still apparent after my hour-long commute home, I dashed into my apartment last week, threw on sneakers, and grabbed my phone.  I was in too much of a state of agitation and pent-up energy to listen to the tree sounds yet, so I opened the audiobook app and continued listening to Better Than Before, the habit-formation book by Gretchen Rubin.

She was talking about the strategy of “Pairing,” wherein we unite 2 things that need to be done (for example, treadmill desk at work).  As I continued stalking over to the park-like cemetery in my neighborhood (where many folks run and walk dogs; I swear, not creepy!), I stopped suddenly struck.

I could unite 2 things I want to do.  

For long, I’ve wanted to read more classical literature.  I am an English major, MFA, and teacher, after all, and an avid (near-penitential) reader.  And like many readers, I have on my shelf “aspirational books”: those that I’d love to have read, but struggle to actually read.  E.g. Moby Dick, Ulysses, The Iliad.

What thunderstruck me on my walk was this: I could listen to the audio versions of these classic books.  Perhaps that would not only help me to “read” them, but also to understand them.  First up?  Anna Karenina.  I have indeed attempted to read the paper and cardboard version of this novel, but have been stymied by the names — who are they talking about again??  The Russians love to use the full “Christian” names, the diminutive names, the LAST names, all interchangeably to the point where I’ve absolutely lost track of who the hell is Tolstoy talking about anyway?!

So, thusly, my brainwave led me to the ebook app where I discovered Maggie Gyllenhaal(!) would read me Anna Karenina.  Downloaded, earbuds in, I began to walk again in the falling light.

And folks, I UNDERSTOOD it!! I listened again on the slog-ride home yesterday, and I could actually recall portions of the plot and (for the most part) retain who was who!

I shared my discovery and attendant elation with a friend on the phone this past weekend.  And she, too, was elated — and suggested we start a book club.

Now, Gretchen Rubin is a book-club lover and, honestly, I thought I would jump at the idea — it has been hard for me to read these books on my own.  But with this new-found habit of listening to dense books rather than reading them (which I do plan to do once I hear it all), I’m not sure that I truly want to meet up and discuss them.  I talk about books all the time.

I recounted this conundrum to my therapist last night, and she asked if I actually wanted to be in a book club. … “Well, not really,” I replied.  “But what I would like is a regular poker night.”

Several years ago, I opened my apartment door to find an Amazon package on my welcome mat.  The package was addressed to me and the packing slip inside was as well.  But without a return address or orderee.  Inside the box was a slim, silver case, within which was a brand-new poker set.  Chips and cards, even dice and a disk with “Dealer” printed on it.  I’ve no idea from where it came, and have held onto it (in aspirational fashion) ever since.

I’ve lugged it to campsites, to winter cabins, but still the deck of cards remains sealed in its plastic sleeve.

“I’d love to have a regular girls’ poker night,” I said to her again.  “To gather and kibbitz; to have fun, because, in the end, it is a game.  But I’ve always been stymied by the fact that my apartment is too small… I’ve wanted a game night for years.”

And so, it seems, I’m going to have to enlist a few friends–maybe even a few new friends–to join me for blind betting, cut decks, and bowls of tortilla chips.

No, I don’t really know how to play — but I will.

 

 

action · art · awe · community · faith · friendship · love · miracle

The Miracle of 12 – 13 – 14

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“I’m getting married on 12/13/14,” I half-joked to my
coworker early this year.
I just love the order, the numbers, the unique fact that
consecutive dates like that won’t happen again until 2103 (1/2/03).
My favorite time of day? 12:34.
Although “5:55” is another favorite, because my brother and I
used to stand in front of the microwave (the only digital clock in the house
then), look at the time and announce, “Five fifty-five!” and then lean over
sideways, our heads upside-down, and announce, “Fifty-five five!” and then stand up straight and do
it again: 5:55!! 55:5!!
I love that kind of order and ease, palindromes, sequences.
THREE POINT ONE FOUR ONE FIVE NINE – I THINK PI IS MIGHTY
FINE!, is one our mother taught to us.
And so, when early this year, I looked at the calendar and
saw that one of these special dates was coming up, I declared to my coworker
that would be my wedding anniversary date.
Now, this was, say June, maybe? No boyfriend. No prospects. It would be a short
engagement! But I figured, What the hell, it’s always good to declare things to
the Universe. Why not?
And 6 months later, yesterday, it hit. December 13th, 2014.
No, I did not get married. Alas.
But I did get something else. An outpouring of love that
rivals the strongest romantic connection:
Yesterday, you all erased my cancer debt. In 36 hours. Less than two
days. Poof! Gone. Done. Finished. Eliminated.
FREE.
Yesterday evening, I became free. Because of the love and
generosity of you, my friends, your friends, and even people I barely know.
One of the donors is a woman I helped at my sales job this
week. A brand new woman I hit it off with, and happened to mention the launch
of the campaign on Friday.
“Send me the link,” she said. And she donated, too.
Over 60 people contributed to the campaign, not to mention
the shares and “likes” and “We’re with you” emails and messages.
In 36 hours. It’s done. Something that has harangued me since I got sick is over. Something I put in every monthly budget and calculate how long it will take, and that I can never move from my apartment with that debt. Something I was shackled to. 
Until yesterday. 
Now, I have to wait for the campaign to officially close in January,
and for the crowdfunding site to take their cut and then send me the donations.
But then, I get to write a check to my landlord. And I get
to say, Yes, it’s time to clean out that janitor room–cum art studio, unstick
the windows, clean out the dried cat poop, put a lock on the door, and hand me a key. 
And then I get to move my art supplies up. Out of my closet.
Out of random drawers.
The half-started art projects, the oil paint, acrylics, and embossing gun, the colored pencils, and easel, and oil pastels, collage magazines, glue
sticks, stamps and stickers, brushes and sketchpads and canvases, exact-o knives and glitter.
All of this. All of this hidden away in my studio apartment
closet. All of this out. Up. Lit. Alive. With me, available to me. Creation
incarnate.
I get to m o v e 
o n.
12 13 14.
I didn’t get married yesterday. But what is a wedding except
a display of love, commitment, hope, cherishment?
On 12/13/14, I absolutely received that. Your love, your
hope, your belief in me.
Wow.
And: Thanks. 

change · friendship · grief · love

Can I get a Witness?

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You want it to be done. You want to stop referencing cancer,
or marking time as “before I got sick,” “when I was sick.” You wanna stop the pang of knowing that “sick” was more than a bad cold. You wanna stop remembering
what it felt like. And you want it to stop being dramatic, and making you feel
dramatic.
You want the, “Oh, you cut your hair” comments to not sting as much, since no, you didn’t cut it, it fell out. You wanna feel neutral
when you see a t.v. show where someone’s diagnosed with it, and stop silently commenting, No that’s not at all what it’s like. You want to stop gagging every time you smell Kaiser hand soap. You want to stop
feeling the fear and the grief and the heartbreak you’d felt when you were
sick.
The feelings you couldn’t really feel then because you had
to just soldier up. When you were told, You could be a poster child for cancer.
When you had to be braver than you wanted because you needed to not scare your
friends.
And, there were the few friends you knew you didn’t have to be
brave with, or braver than you’d felt. There were the few who let you cry the
Ugly Cries, and the one who laid in your narrow hospital bed with you while you
napped, all wiped out from chemo. The one who went to three health food stores
to get the right kind of protein drink, since you couldn’t eat solids. The one
who bought your own bejeweled reusable cup in which she brought you green
shakes, and who packed and unpacked your hospital room with you every single
chemo round, and stayed overnight at home with you the first night after your first
release.
You want to remember the witness, and you want to forget
why you needed one. You want to offer the deepest gratitude and you want to stop feeling
gnawed by the uncertainty of that time.
You want to love the witness, and you want to stop being
reminded of what it was they held you through.
There is no forgetting, there’s only fading. And I don’t
want to forget it really; I just don’t know how to process it all still. Though it seems I am nonetheless.
I was on the phone with my mentor yesterday, talking about this one friend who showed up for me then and how, post-cancer, our relationship hasn’t
been as strong or connected. That somehow it’s almost like cancer, or acute
trauma, was the foundation of our friendship, and now that it’s passed, it
feels like there’s not much more to go on.
I told her how sad I am that we’re not like we were,
but that I don’t know that I can or if I want to be otherwise.
It reminds me of a quote from a movie that will make you
groan. But. In Speed, Sandra Bullock
tells Keanu Reeves that relationships based on intense experiences never work. (She later jokes, they’ll have to base it on sex, then. And that’s not really
an option with my friend, cute as she is!)
So, what do you do? I told my mentor that my friend was a witness
to that hardship, and about my pattern of how difficult it is for me to let go of certain things
because I’m afraid people won’t believe me. That my experience of something
will be called into question, without someone else to verify it. My friend is
my verifier and my witness. Without a current relationship, who will remember?
Without the reminder, who will believe me?
So, it’s about more than her, isn’t it? It’s about more than
needing her continued friendship as a point of reference of truth in my life.
It’s about my own ability to hold truth and facts for myself without outside
validation.
And that, is a lifetime process.
But it brought up a lot of grief yesterday on the phone (which is why there was no daily blog). The
star-pupil cancer patient. Who wore bright colored socks and leopard print
chemo caps. Who had her own stash of organic herbal teas and would walk into
the hall to fill her own ceramic mug from home. The star cancer patient who
worked so hard not to be one, now processing what it actually felt like
underneath all that “Chin Up” posturing that was half-posturing, half-I’m
totally awesome, and cancer can fuck itself.
But the friendship has suffered since I’ve been healthy. And
I don’t know how or what to do on that. I think releasing the attachment of my
friend as witness, of needing a witness
is a good place to start.
I don’t want to remember and I don’t want to forget. And
until I find a place of peace with “what went down,” that division will always
cause me unrest. 

career · community · death · friendship · fulfillment · life · love

Blood Brothers

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Yesterday morning I had coffee with a cancer friend, for
lack of a better term.
He’s someone who reached out to me when I returned to work last Spring,
who was 15 years out from his own similar cancer diagnosis, and said if I ever
wanted to talk, he was available.
Since then, we’ve had coffee about once every 6 months or
so, and we get to talk about walking back into a life that sort of looks the
same on the outside, but has completely changed. We exchange the requisite,
“Everything’s okay with your health?” question early in the conversation so we
can continue on.
We speak mostly about work and fulfillment.
At the time we first met up, he was in a transition of his
own, and now, about 18 months later, is again. And so we spoke about
meaningfulness, about intention, about the often tipped balance between the
checkbook and joy.
I love talking with him. Because he is my cancer friend. Because, it’s different than the
first coffee date I had even earlier yesterday morning (a Jewish holiday and
therefore a day off work), when I met with the home stager about potentially
working and apprenticing with her.
With her, I only said things like, I’m just looking for a
change and to instill more creativity into my every day life, to engage more of
my heart in my work. With him, the whole conversation is built on the
understanding of why that’s so. It’s not
just because I’m a flighty 30something; It’s because I’m a fighting 30something
(if you will).
I left the first coffee date with the home stager feeling
mildly despairing and depressed. And I left the conversation with my cancer
friend feeling uplifted, supported, and understood.
I know what he’s talking about when he says how it wrecks
him that he has been so wrapped up in work again that he hasn’t had time for
his outdoor hobbies. He knows what I’m talking about when I say that we have
the privilege and curse of not being able to run on the hamster wheel of life
without questioning what we’re doing.
I never wanted a cancer friend. I never wanted to be part of
a cancer support group, and tried a few times without going back. Therapy isn’t
the same thing either, though that helped. But talking with someone who also
had their next breath marched up to the guillotine… it’s different.
It’s not “all cancer all the time.” Our conversation wasn’t even about
grief or anger. It was barely about cancer at all, except that of course it
was. It is the reason we met, became friends, and can share with one another
on a different level what our life paths are looking like and what we want them
to look like and the struggle between just going along as planned and taking
the time to question it all.
I imagine in some ways, it’s like war veterans’ ability to
have an instant understanding of one another: You’ve both seen life and death;
you’ve both fought bravely and been terrified; you’ve both come back to
civilian life and are attempting to make sense of it all, while still paying
your cable bill and buying groceries alongside every other citizen.
But you also know that, conscious or not, you both make
every decision in reaction to and on top of your experience at war. You can’t
not. It’s part of your DNA, now. You’re blood brothers.
I never knew I needed a cancer friend. And I sit here
writing with tears of gratitude that I have one. 

abundance · career · change · community · courage · friendship · hope · love · scarcity · work

Yes, We Can.

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  • emailed
    landlord to ask to use 4th floor abandoned room as art room
  • emailed
    vocal coach to inquire about lounge singing, how to start
  • emailed
    friend to ask about going up in a small engine plane again. (flew one myself this year, and as always predicted, loved it. eventual vision of napa valley tour pilot.)
  • have interview on monday for two teaching positions with a jewish
    organization
  • have interview set up for another teaching gig
  • have modeling/portraiture session set for next weekend
  • replied
    yes to get minimum wage to usher at a Cake concert in two weeks
  • will
    be reading tarot cards at good friend’s Halloween party on donation basis
  • called friend’s mom who’s a professional home stager about being her assistant
  • have
    coffee info interviews set up with a few high-ballers in the community
  • have
    action items from previous info interviews to follow up on
  • emailed
    work-out studio to inquire about becoming an instructor and was told it’s
    possible (with a lot of work)
  • have a
    solid lead on fine dining waitress work if comes to that
  • registered as a model with a “real person” modeling agency
  • updated
    my profile on modelmayhem website
  • got
    exact amount of pto i’ll be paid out when I leave my job at end of month
  • inquired about health insurance exchange
  • got
    flu shot and all blood tests up to date (all negative – which is
    positive!)
  • made
    appointment for teeth cleaning
  • ordered
    new shipment of contact lenses before these fall apart in my eyeballs
  • replied
    to private tutoring gig from tutoring website I’m registered with (which…
    i’d completely forgotten about until I started getting these emails
    two weeks ago… coincidence?)
  • emailed
    yesterday’s blog about t’shuvah to a jewish publication (a little late,
    obviously, but still.)
…to name a few of the actions I’ve taken in support of my work transition!
I am nervous about leaving the safety of my
40houraweekdeskjob. Yes.
But, I am taking a lot of action. Even as I drag my
feet in some places, and have certainly
been watching more Netflix than is good for any one person.
But I have a phone call with a mentor today and we’ll talk
about smallness and scarcity and healing and changing. We’ll talk about, “Do not
go back to sleep.” We’ll talk about the beguiling and insincere safety of being
quiet and small. We’ll talk about the pain and bravery of stepping out of the cage
and the tenacity and audacity it takes to stay out of it.
It’s not that I haven’t taken or thought to take any of the
above actions before. It’s not my first time at this rodeo. But I just feel
different. To quote Elisabeth Gilbert quoting a Balinese healer: “Even in my
underpants, I feel different.”
But I also know my habit and pattern of swift work followed
by years of inaction. I know what it’s like for me to engage in a flurry of
activity and then allow it to languish by my lack of follow-up. I know what
it’s like to abandon myself.
Which is why I’m telling everyone and their mother
(literally) about my impending transition.
I cannot do this alone. I am a creature of habit, and I need
you to be like my wagon train – I need you to lead me away from the ruts. If I
let you know I’m on this path, you can help me stay on it. If I let you know
it’s terribly painful for me to work toward something new, you can hold my hand
and tell me you believe in me.
I know the source of all this change must come from within –
I know it’s up to my own inner work to be the foundation for a new life. But I
also believe in you, who believes in me, and we cycle one another into our best
selves and our best lives.
Yes, I am the one who needs to actually look up that
professional development course. And I’m the one who needs to continue
looking at alternative work websites – and actually reply – but without you to
cheer me on, without you to help me hold the lantern of faith, this change wouldn’t work.
That’s what feels so different this time – I feel supported
internally and externally in a way these transitions have never felt. I feel
optimistic and hopeful, giddy and aware.
Yes, the future is uncertain. But one action at a time, with
your help and your heart, I am clarifying the vision of a
future (and present) me who is freer than I’ve ever allowed myself to be. 

adversity · friends · friendship · growth · laughter · love · opening

Open Sesame!

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I’m still a little giddy from last night’s show with my
band. Our debut and farewell show! (Though, there are rumors we may have a
“reunion show” on Halloween.)
But a friend said something to me after the show that’s been
sticking with me. She said that I am so much more open and confident now, that
I’ve changed so much in the last year.
This same friend sat with me in ERs, cared for my cat while
I was in chemo, and allowed me to bawl on her couch when things seemed so hard.
We’ve known each other only for maybe 4 years, but a lot has
certainly happened since then, and she said she feels like she’s seen me
blossom. And that, especially with everything that I’ve been through, how
heartening it is to see that I’ve become and am becoming more open, and more
engaged.
She referenced a quote she’d read in a book about women’s
aging, that women come to a crossroads in their lives where they choose: become
more open, or become more rigid, and therefore bitter. I told her, I don’t
think that’s just women!!
But, what struck me about her initial comment was that it
echoed something I’d thought to myself only a few days earlier.
I was in my car, and made some kind of comment aloud to
myself, and laughed about it. And I had a flashback to when I was in junior or
senior year of high school, and this one frenemy commented that I’d become much
more relaxed and funny in the last little while.
Which may have had something to do with the fact that I started
drinking and smoking pot… but… She was right. I wasn’t as exacting or
perfectionist as I had been.
I sort of took that “easy-going” train off the rails a
few years later… But I remember feeling then that she was right, that I felt less … not “square,” but serious, I suppose. (I was
a very serious teen!, like most emo children.)
And as I sat in my car laughing to and at myself the other day, I
had a similar self-awareness: I’ve become and am becoming more easy-going. (In
some ways! In others, you have to untangle my brain with a tweezer and a
magnifying glass!)
To have that same sentiment reflected back to me only days
later by my friend was heartening, affirming, and… sentimental.
She said that as she watched me play, she found herself
getting teary, thinking about everything I’ve gone through, and what I’ve made of
it. And then she had to check herself, because you don’t cry at a rock show! 
The same understanding about rigidity or openness I heard on
an audio CD about “Exceptional Patients” from Dr. Bernie Siegel. He said that
after cancer, people tend to go one of two ways: become scared of everything,
because death is just around the corner, or (finally) throw caution to the
wind, because you’ve literally faced one of the worst things that can ever
happen to you. You’ve stared death in the face: Will you now shrink at all risks,
or will you say, Tah, this is cake?
Well, we all know, I don’t think it’s “cake” to say “Tah” to
fear, but we all know that I’ve been doing it anyway. Because, really, there
isn’t anything greater to lose. There isn’t any harder challenge. (Now, yes, there are other challenges that people face that I
cannot imagine, child loss being one that’s top of mind lately.)
I find no glory in shutting down. I’ve lived most of my life
in a state of “flight” and paralysis. I will never call it a gift, but I do
recognize with appreciation and awe that, following visceral horror, I have
become a woman more willing to be open, free, funny, and present than I’ve ever
been. 

abundance · community · faith · friends · friendship · gratitude · healing · joy · life · love · support

Card Reading

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I had very specific plans for when I came home last night:
watch Apollo 13, “take care” of myself,
and go to bed by 10.
Only one of these happened.
For most of the day, I was out & about in lots of conversation with
lots of people, expending lots of up, outgoing energy, and I wanted to counter it with
some quietude. Before coming home for the evening, I was in a coffee shop,
finishing up some extra work, and addressing cards for some friends.
I didn’t have the address for one, so I texted her for it,
and told her that I must have 10 of her envelopes at home with her address on
it; in fact, I had one of hers on my mantle.
She asked me which one, but I couldn’t recall exactly, and
told her I’d send her a photo of it when I got home.
This, was the first domino toward the hijacking of my
evening.
I did come home, take a photo and send it to her, a lovely
decorated envelope with stickers and curly-cues and kind words, like all of
hers. Next to it on my mantle (well, the top of a bookshelf, really) were a
card from the director and one from the assistant director of the play I was in
in April, with deliciously glowing, appreciative, complimentary, and supportive
words. Such kindness and such a reflection of my being “seen” by them, in one
of my aspiring avocations. The last one up there was a thank you card from my
best friend on Long Island’s wedding, thanking me for being there and what a
treat it was to have me there, literally in her bed, the night before the
wedding, and helping/watching her get ready the next day; that it wouldn’t have
been the same without me.
You can see why I keep these things.
But, it was also time to probably pack them away, do some
cleaning. And I wanted to send more photos of my friend’s envelopes to
her, since I knew she was in a space to need her own (literal) sparkle reflected back to her. 
And, down the rabbit hole we go, into the desk drawer where I keep
cards, envelopes so I can remember return addresses (yes, I know there’s a
better way), and art inspiration bits, like postcards from galleries or pages
torn from magazines.
I’ve known this drawer needs attending to. If, god forbid, I
were to croak, it would be hell for the person cleaning it out, and I know
they’d just trash the lot, since, who keeps someone else’s old greeting cards.
But, also, it’s unusably full at the moment. Because in it,
too, are all the cards I received when I was initially diagnosed with Leukemia
in late September 2012, and also a host of them came in around the
Hanukkah/Christmas season that year.
I’ve been avoiding having to carve through them. Because how
can you discard those messages?
When I was sick, I lined all the cards up on the walls of my
hospital room. I taped every single one up around me, to remind me of the
network of support and love that I had. Each card, a message of love, faith,
healing, fortitude, just for me. You couldn’t come into my hospital room
without immediately knowing that I was loved. And how f’ing important was that.
This was not the room of a dying woman. This was not the
room of a woman told she had a 40% chance of living through the next 5 years, even with treatment.
This was not the room, either, of a woman who looked like a patient, despite
the baldness, weightloss, and IV stuck into my arm and chest. I wore jeans and a
sweater, like everyone else. I was a human, not a patient. I was a woman loved,
not a pity case.
How rallyingly important was that to know, feel, and
remember every single day.
But, when the trips to the hospital were finally over, and
it was time to reacclimate to living in my apartment full-time, what to do with
those cards?
I’m a keeper of things. Sentiments, magazine pages,
interesting rocks I find on a mountain or beach. I wouldn’t say I’m a hoarder,
but I do have a bag of gently used tissue paper in my closet … but it’s folded
neatly and in color blocks, so it’s okay, right?!
I also have a bag in my closet of the covers to theater
booklets of plays I’ve been to; movie stubs; plane tickets; the brochure for a
place I went camping or an attraction I toured.
The trouble is, I’m not a scrap-booker, so I just kinda
carry this bag of non-chronologically ordered “crap” with me from home to home.
But, that’s okay. One day, like the cards, I’ll go through them.
But, last night was for the card drawer.
It was slow-going. I had to take a deep breath before taking
the rubber band from around the batch of 2012 holiday cards. I knew this was
going to take a while and probably bring things up.
But I began. And with each card, I was reminded of why I’d
kept them until now.
Here’s the one from my college classmate, now in LA, saying she’d
enclosed a gift card to Trader Joes.
Here’s one from a former colleague saying she loves getting
the bloggish updates I was posting then to my lotsahelpinghands website.
Here’s one handwritten from an Etsy company saying “a friend”
was thinking of me and wanted me to stay warm. This, I remember, accompanied a
package of 6 “chemo caps” ranging from thin to thick, the one I wore most, a
fuzzy leopard print that kept me feeling fun and warm. I still don’t know who
sent those, as there was no name. Thank you, whoever you are.
Last night, with each, if I knew the sender and their cell number, I
took a photo of the card, and sent it as a text with a note of thanks to them.
Each text, a reminder to us both of what friendship means, even for people who
aren’t close.
It was nearly 11 when I finally decided to stop. I’ve
barely made a dent into the drawer. But was able to cull a few things out,
deciding that with some, having a photo of them now is enough.
At the closing of this activity, I found myself in soft tears of
gratitude. So many people surrounded me
with love. With funny cards and sentiments, with crazy wacked-out envelopes, with heartfelt messages of hope and healing. And only a handful of these folks
were people I keep in regular touch with. So many people came out of the
woodwork to support me.
I was told once during the time I was sick, that I had no
idea how many people were rooting for me. I agreed. I knew I had no idea, and I
knew that was astounding and one of the greatest showings of human generosity
that I’ve witnessed.
I had priests, rabbis, Muslims, and Buddhists praying for
me. My mom’s hairdresser and my Aunt’s student. I had a class of
kindergarteners praying for me.
I remember, too, when I was sick, trying to figure out how I
could send thank you cards to everyone who’d contacted me, but I could only
handle a few.
In this retread through the cards, in sending them back out
to their sender with my note of thanks, I hope I am closing that loop of love,
and letting you all know:

Your prayers worked, and I love you back.  

awareness · community · fatigue · fear · friendship · growth · hope · sharing · the middle way · trust · truth · vulnerability

On Leave.

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The thing about being a good little soldier is that
eventually you suffer battle fatigue.
Over the past two weeks, I’ve had doctors appointments up
the wazoo because of a liver enzyme test that came back extremely elevated.
Granted, it’s the first time they’d ever run this test since I finished chemo
last Spring, but don’t try and tell them that.
In the meantime, I’ve gotten panicky emails from my doctor
to stop drinking alcohol immediately (check), to get another test immediately (check), and
asking if I’ve had my hepatitis vaccines when I was a kid (check).
Being the good little soldier I am, and using the wisdom of
not pushing the panic button, I’ve done pretty well these past two weeks, doing
what I’m told, following up diligently, and trying to follow the new all-organic
diet suggested to me by my naturopath.
This is all well and good not to panic when panic isn’t
prudent. But yesterday I came to see, while reduced to a ball of tears in front
of a friend, that there is a third option between panicking and “soldiering
on.” There’s acknowledgment of my fear.
I told my coworker the other day that I just feel weary – that trying not to freak out is exhausting; that
trying to maintain an emotional equilibrium is hard work.
And underneath that even façade, which also has a thick vein
of veracity, is fear. They can co-exist, but I have to acknowledge that they
both do.
It is activating to have to go through all these tests. It
is not my favorite thing to google “autoimmune hepatitis” (which, we learned, I don’t have). It is even less my favorite thing to contemplate that the reason for
this trouble in the first place is a result of something doctors did to me – despite the rational
fact that they
had to. I had
Leukemia. The cure is chemotherapy. Chemotherapy causes havoc.
I am not freaking
out, but I am concerned. And I am “activated.” It’s hard not to be – I’ve had
legitimate reasons to freak out in the past – but even then, if you were a
reader when I was going through that, you saw that the times I freaked out were few and far between –
and then, they weren’t panics or freak outs, they were the falling-armor
acknowledgments of a real threat to my security and joy.
I was a good soldier then too, but it was also very important to break down sometimes with someone
trustworthy. To acknowledge both sides: Bravery and Vulnerability.
Which are coexistant. The first does not preclude the
second. And I’m pretty sure the second enhances the first.
It was not as if I had some grand easy epiphany about
allowing all of my emotions to be valid. I sat yesterday with a group of
folks, and by the end of our time together, I was leaking silent tears. I
didn’t anticipate to do that, but we create a sacred space together, a place
where it was safe to allow something I didn’t know was happening arise. And
because of that, a friend was able to see my pain, and sit with me while I let
the soldier take a rest, and let the scared and weary and angry woman take a
spin for a while.
I felt better after I acknowledged all that was going on.
And coming to realize in conversation with her that I’d been forcing my
experience into two categories: Panic and Perseverance. Acknowledging fear does
not equate panicking, is what I learned. And it was important, so important,
for me to let some of the rest of my emotions out, besides good humor,
diligence, and perseverance.
Because I believe that without letting some of that pressure
out, without allowing that vulnerability to arise, our capacity for soldiering
is greatly hindered.
What happens is burn-out, instead.
When I only allow validity to one side of my experience, I am
hampering my ability to move forward.
I don’t have to be a crying mess about having to seek out
only organic meat and my fear of the cost and the inconvenience,
and wondering if I’ll have to now be like those people in food addiction
programs who have to carry around heavy-ass glass containers of their own food
to restaurants because they can’t eat anything else and become a burden to
myself and my social life…
but sometimes, at least once(!), I do have to admit that
these are thoughts and emotions that are happening, too.
I’ve never really been a fan of the Buddhist term, “The
Middle Way,” but fan or not, I seem to be learning all about it.